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Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and Protection

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Contributed by:Administrator
Originally posted:2nd October 2009: 8:00 am
Last updated:2nd October 2009: 2:41 pm
Short URL:http://gen2phen.org/node/7129
Public document Public - anyone can view
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DOI: 
info:doi/10.1371/journal.pgen.1000665
URL: 
http://feedproxy.google.com/~r/plosgenetics/NewArticles/~3/pQPABV6_FNw/info%3Ado...

PLoS Genetics today has published five viewpoints relating to the safe use of GWAS study data.

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#1 I want to point out the

Submitted by Gudmundur A Thorisson on Mon, 12/10/2009 - 18:29.

I want to point out the reference made to discussions amongst P3G, GEN2PHEN and others earlier in the year, as documented elsewhere on this site:
http://www.gen2phen.org/researcher-identification-primer
http://www.gen2phen.org/document/researcher-identification-whitepaper

"The Public Population Project in Genomics (P3G) is calling for a universal researcher ID with an access permit mechanism for bona fide researchers."
[..]
"The implications of the Homer paper were discussed by the international Public Population Project in Genomics (P3G) (http://www.p3g.org). The consensus was that any scientist seeking to work with genomic data be required to adhere to an internationally agreed code of conduct and to provide proof of institutional status as a bona fide researcher.
A successful applicant could be awarded a permit and placed on a registry of users that would allow defined access to genomic databases (e.g., individually identifiable password and/or other criteria). This would avoid the need for repeated applications to prove bona fide status to different bodies, as is currently required. Infringement of the terms of the permit would bar the applicant from further access to genomic databases adhering to this code of conduct."

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